Standardizing Health Outcomes fot Lung Cancer. Adaptation of the International Consortium for Health Outcomes Measurement Set to the Spanish Setting
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Title
Standardizing Health Outcomes fot Lung Cancer. Adaptation of the International Consortium for Health Outcomes Measurement Set to the Spanish SettingAuthor (s)
Date
2020-09-02Publisher
Frontiers MediaBibliographic citation
ESCUDERO-VILAPLANA, Vicente, et al. Standardizing Health Outcomes for Lung Cancer. Adaptation of the International Consortium for Health Outcomes Measurement Set to the Spanish Setting. Frontiers in oncology, 2020, vol. 10, p. 1645.Type
info:eu-repo/semantics/articlePublisher version
https://www.frontiersin.org/articles/10.3389/fonc.2020.01645/fullVersion
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Abstract
Purpose: Lung cancer (LC) and its treatment impose a significant burden on patients' life. However, patient-centered outcomes are rarely collected during patient follow-up. Filling this gap, the International Consortium ... [+]
Purpose: Lung cancer (LC) and its treatment impose a significant burden on patients' life. However, patient-centered outcomes are rarely collected during patient follow-up. Filling this gap, the International Consortium for Health Outcomes Measurement (ICHOM) developed a standard set of variables for newly diagnosed LC patients. In order to facilitate the use of this standard set, the project aims to adapt it to the Spanish setting.
Methods: The variables (instrument and periodicity) to be included in Spanish standard set were selected through consensus during 4 nominal groups (13 oncologists, 14 hospital pharmacists, 4 hospital managers and 3 LC patients), under the supervision of a Scientific Committee (1 oncologist, 3 hospital pharmacists, 2 LC patients advocates).
Results: The variables agreed upon included: (1) case-mix: demographic [age, sex, education and social-family support], clinical [weight loss, smoking status, comorbidities (Charlson index), pulmonary function (FEV-1)], tumor [histology, clinical, and pathological stage (TNM), EGFR, ALK, ROS-1, PD-L1] and treatment factors [intent and completion] and (2) outcomes: degree of health [performance status (ECOG) and quality-of-life (EQ-5D, LCSS)], survival [overall survival and cause of death], quality of death [place of death, end-of-life care and palliative care, death aligned with living will], treatment complications, and others [date of diagnosis and treatment initiation, productivity loss (sick leave)].
Conclusion: The adaptation of ICHOM standard set to the Spanish setting pave the way to standardize the collection of variables in LC. [-]
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Frontiers in Oncology, 2020, v. 10Rights
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