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Development and validation of a specific questionnaire to assess health-related quality of life in patients with home enteral nutrition: NutriQoL® development
dc.contributor.author | Cuerda, María Cristina | |
dc.contributor.author | Apezetxea, Antonio | |
dc.contributor.author | Carrillo, Lourdes | |
dc.contributor.author | Casanueva, Felipe | |
dc.contributor.author | Cuesta, Federico | |
dc.contributor.author | Irles, José Antonio | |
dc.contributor.author | Virgili, Maria Nuria | |
dc.contributor.author | Layola, Miquel | |
dc.contributor.author | Lizán, Luis | |
dc.date.accessioned | 2017-06-27T18:06:10Z | |
dc.date.available | 2017-06-27T18:06:10Z | |
dc.date.issued | 2016 | |
dc.identifier.citation | Cuerda, M. C., Apezetxea, A., Carrillo, L., Casanueva, F., Cuesta, F., Irles, J. A., ... & Lizan, L. (2016). Development and validation of a specific questionnaire to assess health-related quality of life in patients with home enteral nutrition: nutriQol® development. Patient preference and adherence, 10, 2289 | ca_CA |
dc.identifier.issn | 1177-889X | |
dc.identifier.uri | http://hdl.handle.net/10234/168119 | |
dc.description.abstract | Introduction: Home enteral nutrition (HEN) is indicated in patients with a functional gastrointestinal tract but who are unable to meet their nutritional requirements with normally consumed foodstuffs. HEN allows patients to remain in their social and family environment, thus reducing complications and costs associated with hospital admission, while increasing health-related quality of life (HRQoL). HRQoL in patients with HEN is mainly evaluated by generic instruments, which are not sensitive enough to identify certain specific patient-related outcomes of HEN. Objective: To develop a specific instrument to measure HRQoL in patients receiving HEN whose results allow interpretation regardless of the underlying disease and nutritional support administration route: the NutriQoL® questionnaire. Materials and methods: The development of the NutriQoL entailed a literature review, focus groups with experts, semistructured interviews with patients, an assessment of face validity and feasibility, and Rasch analysis conducted on data from a sample of 141 patients and 24 caregivers. Results: Of the 52 items initially proposed on the basis of the literature review, expert focus group, and semi-structured interviews with patients and caregivers, 17 items were finally selected through the development process to make up the final version of the NutriQoL, as well as a visual analog scale for global HRQoL scoring. The selected items were evaluated as adequate for frequency, importance, and clarity. Furthermore, they have been shown to be independent of the underlying condition and HEN administration route. Conclusion: A new instrument for measuring the HRQoL of patients with HEN in Spain has been developed, whose results are independent of the underlying condition and administration route. The next step will be the validation of the questionnaire to ensure that the instrument is valid, reliable, and sensitive to health status changes in patients, to be used periodically in usual clinical practice. | ca_CA |
dc.description.sponsorShip | The abstract of this paper was presented at the International Society for Pharmacoeconomics and Outcomes Research 17th Annual European Congress (Amsterdam, the Netherlands) on November 2014 as a poster with interim findings. The poster’s abstract was published in “Value in Health” Vol 17, Issue 7, A518 (http://www.valueinhealthjournal.com/article/S1098-3015(14)03541-4/pdf) and A575 (http://www.sciencedirect.com/science/article/pii/S1098301514038650). Nestlé Health Science sponsored the study | ca_CA |
dc.format.extent | 8 p. | ca_CA |
dc.format.mimetype | application/pdf | ca_CA |
dc.language.iso | eng | ca_CA |
dc.publisher | Dove Medical Press | ca_CA |
dc.relation.isPartOf | Patient preference and adherence, 2016, vol. 10 | ca_CA |
dc.rights | © 2016 Cuerda et al. This work is published and licensed by Dove Medical Press Limited. The full terms of this license are available at https://www.dovepress.com/terms.php and incorporate the Creative Commons Attribution – Non Commercial (unported, v4.0) License (http://creativecommons.org/licenses/by-nc/4.0/). By accessing the work you hereby accept the Terms. Non-commercial uses of the work are permitted without any further permission from Dove Medical Press Limited, provided the work is properly attributed. For permission for commercial use of this work, please see paragraphs 4.2 and 5 of our Terms (https://www.dovepress.com/terms.php). | ca_CA |
dc.rights | Atribución-NoComercial 4.0 Internacional | * |
dc.rights.uri | http://creativecommons.org/licenses/by-nc/4.0/ | * |
dc.subject | Home enteral nutrition | ca_CA |
dc.subject | Health-related quality of life | ca_CA |
dc.subject | Questionnaires | ca_CA |
dc.title | Development and validation of a specific questionnaire to assess health-related quality of life in patients with home enteral nutrition: NutriQoL® development | ca_CA |
dc.type | info:eu-repo/semantics/article | ca_CA |
dc.identifier.doi | https://doi.org/10.2147/PPA.S110188 | |
dc.rights.accessRights | info:eu-repo/semantics/openAccess | ca_CA |
dc.relation.publisherVersion | https://www.dovepress.com/development-and-validation-of-a-specific-questionnaire-to-assess-healt-peer-reviewed-article-PPA | ca_CA |
dc.type.version | info:eu-repo/semantics/publishedVersion |
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Excepto si se señala otra cosa, la licencia del ítem se describe como: © 2016 Cuerda et al. This work is published and licensed by Dove Medical Press Limited. The full terms of this license are available at https://www.dovepress.com/terms.php
and incorporate the Creative Commons Attribution – Non Commercial (unported, v4.0) License (http://creativecommons.org/licenses/by-nc/4.0/). By accessing the work you hereby accept the Terms. Non-commercial uses of the work are permitted without any further permission from Dove Medical Press Limited, provided the work is properly attributed. For permission for commercial use of this work, please see paragraphs 4.2 and 5 of our Terms (https://www.dovepress.com/terms.php).