“When I need help, I ask my friends”: experiences of Spanish autistic women when disclosing their late diagnosis to family and friends
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“When I need help, I ask my friends”: experiences of Spanish autistic women when disclosing their late diagnosis to family and friendsAutoría
Fecha de publicación
2024-04-23Editor
Frontiers MediaISSN
1664-1078Cita bibliográfica
Garcia-Molina I (2024) “When I need help, I ask my friends”: experiences of Spanish autistic women when disclosing their late diagnosis to family and friends. Front. Psychol. 15:1342352. doi: 10.3389/fpsyg.2024.1342352Tipo de documento
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https://www.frontiersin.org/journals/psychology/articles/10.3389/fpsyg.2024.1342 ...Versión
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Resumen
Family and friends may play an important role both in the identification and diagnosis of any condition, as well as in the provision of support afterwards. However, when the diagnosis is autism and it arrives late, ... [+]
Family and friends may play an important role both in the identification and diagnosis of any condition, as well as in the provision of support afterwards. However, when the diagnosis is autism and it arrives late, as is often the case with autistic women, we find the double stigma of experiencing the repercussions of a late diagnosis, along with the disbelief of those closest to them. This study aims to analyse and understand the experiences of autistic women with their family and friends throughout the diagnostic process and subsequent help-seeking endeavors. A total of 21 Spanish autistic women aged between 20 and 58 years answered a series of open-ended questions—respecting the participants' preferred modality. From the thematic analysis, two main themes emerged regarding the reactions of family and friends, dividing the experiences into two temporal phases: when disclosing the diagnosis and sometime later. Most participants noted that their relatives did not believe them, reacted in a hostile way, or did not give it any importance at the time of disclosure. As a result, their relationship deteriorated even further over time. In contrast, their friends served as pillars of support from the beginning, along with their partners and the associations they attended, because of which they met more autistic women who became their “family”. Thus, another consequence of late diagnosis in autistic women is highlighted, the incomprehension or disbelief from their relatives, and the important role of friendships among women and among autistic women. [-]
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Frontiers in Psychology, 2024, vol. 15Derechos de acceso
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Excepto si se señala otra cosa, la licencia del ítem se describe como: © 2024 Garcia-Molina. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.